Update on Baby Carson

[the look of love]

The lab results show that Carson has juvenile onset pompe.
My heart just breaks for the family. thank you so much for your prayers and support.
Please keep them in your prayers as they have a long rough road ahead.
And please pray for a cure for this diease.
God bless

 

[Daysdegrassi]

I'm sorry to hear this. My thoughts and prayers go out to baby Carson and his family. I hope they will find a cure soon.

 

[katmouse]

I'm so sorry. I hope they find a cure too.

 

[b2curious]

Thank you for letting us know. I will keep Carson, and the rest of the family, in my thoughts and prayers.

 

[Soaphead]

My continued prayers for him and the family.

 

[Days Pretender]

so sorry, will keep the family as well as the baby in my prayers too.

 

[the look of love]

I havn't had any real news on Carson He did undergo some more tests to try to detemine when the Pompe could start to cause other problems Have not heard if the tests results are back. Thanks for keeping the family in your prayers :love: